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Showing posts with the label advocate

I don't want to melt down.

My autistic brain on fire This is how I feel when I am getting close to a meltdown. I am exposed to one of my trigger sounds (babies crying, dogs barking and fireworks). I am in a situation where I cannot escape them.  Learning how to use a computer lead to many meltdowns, one so bad that 911 was called and I was hospitalized for several days. I have a low frustration threshold for the unexpected.  Meltdowns are an inner and outer body experience at the same time. I can feel the interior of my body shaking, my throat becoming hamburger meat as I scream, and my hands like a vice as they hold my ears. There is presence and detachment at the same time. Afterword, there is an exhaustion that lasts for hours or even a full day. I swear, hit, spit, bite and attack anyone or thing within my flailing, spinning, Tasmanian Devil like path. I self loathe and feel helpless and guilty later. I have to wind down until the pent up pressure is gone.  The worst thing another livin...

I am autistic and was abused in the Emergency Room

In May, 2009, I had a violent meltdown that lead to law-enforcement and an ambulance ride to the E.R. Upon arrival I was greeted by a  screaming baby,  one of the very things my ears just CANNOT tolerate. I covered my ears and begin screaming in distress and immediately I witnessed the ignorance, prejudice and abuse of my junior high and high school past was crashing down on me in adulthood.  Several people were in the room barking questions like "What's your name?" "What meds are you on?" "Stop screaming, you're scaring the lady in the bed next to you!" On top of this, the baby is still screaming, which I am reminded "isn't its fault!" in a derogatory yell. I remind her through tears that I have  autism  and  sensory processing disorder  and cannot help my response, either. That brought a threat, "If you can't be quiet then we'll have to give you Haldol. You can't take Haldol? (I am allergic) I thought yo...