Skip to main content

My grown up SENSORY FRIENDLY HOUSING wishlist


I'm not waiting for Christmas.

I compiled a wish list regarding housing that takes into account the special need of the ASD individual with life-limiting sensory processing disorder (SPD).

First, I state why living in an "anything goes" neighborhood (where most people live) is unhealthy and unsafe.


   -Randomness; lack of routine and predictability as faced in most typical living environments.
-         Chance for harm: victimization due to natural gullibility (lack of “street smarts”).
-         Lack of adequate transportation due to not being able to drive a car or tolerate the sensory overload of public transportation.
-         Staying inside, isolated from the community due to auditory and visual sensory overload.
-         High blood pressure due to pervasive environmental stressors like traffic, dogs, and children playing. and underlying depression that paves the way for other health problems like heart disease, hypertension, depression and suicide (not to mention worsening of related diagnoses such as OCD).
-         More reliance on Rx medication to combat anxiety and depression arising from a random, “one size fits all” sensory environment.

What I envision:
An assisted-living model facility for those with ASD with SPD in medical need of a low-sensory environment.
        
-Subsidized (at least a majority of them) so that those who don’t have rich parents can have a clean and safe place to live, covered by disability (SSDI) and any supplemental money they earn from employment (for those who can be employed). Section 8 or Section 42.
       Individual apartments for 1 person ( without children). This would not be a place for those wanting to raise families.  
        Transportation: service at little or no cost to residents.
-         Community room for residents to visit with and recreate with one another. that is sensory friendly. Appropriate lighting and sensory accommodating electronics.
-         No olfactory distractions like cigarette smoke. 
-Auditory sensitive friendly: Not a facility for individual dog ownership as their barks carry painfully loud,causing auditory distress. This would also prevent biting and messes. 

Therapy dogs could visit in a community room. 
Anyone who didn't want to be in the room could remain in their apartment during these visits.

- Exercise: Simple and accessible exercise equipment (treadmill, exercise bike, hand-weights)

-      Nutrition:   Green space outside for residents to form a community project such as a fresh garden to eat healthy.

-         On site case management, crisis management and counseling.

-          Employment opportunities: (for those who can work). This would include working from home.

-A place for worship (clergy from any faith could visit and hold services)

Those with autism and accompanying sensory processing disorder that make everyday life unlivable if not for special accommodations and supports will struggle long after this recession has ended. They won’t be able to have a place to live apart from their parents, work, or connect with others-something most take for granted.

Taking what I have written into account, I can personally say that I could be an asset to my community if such a place as previously described actually existed. The economy would benefit from whatever education and job-placement I would receive via an occupational therapist. I would benefit from being able to meet, make, and maintain friends in a low sensory environment.

Finally, parents could meet their Maker knowing their adult children are safe. Both can enjoy, worry free, the time they have left together. I wish I could say that was the case for my mom and me during her final months.
I should also say that this environment would be inclusive to the community. Residents with visitors of all ages would be welcome (providing they did not create an unreasonable disturbance to residents).

 Check out this link to see how a place for transitional housing is taking shape. It is a start. http://firstplaceaz.org/

I have touched the "tip of the iceberg". There is much more adults with ASD facing similar challenges can add. I hope this will encourage someone to do just that in their own blog post. Please share this post if it interested you. I don't see this topic being addressed enough. 

Popular posts from this blog

On the fringe: autism and family gatherings

Child covering ears Family gatherings are noisey. There are a myriad of voices that range in pitch and volume. There is that one person who laughs so loud that tears well in my eyes. Boys yell and bang on the piano. Someone is taking a photo with flash. Greeting people is part of being polite, even when you are already in sensory overload. Perfumes and colognes combine and foods from the kitchen circulate. Men yell at the football game and women laugh at something funny.  All this is taken in at the door. There is a long way to wade through before I can put my coat in a quiet bedroom. I have to remember to smile and say "hello" as well as accept hugs. There are a few cousins who cannot stand my presence, though, at age 5, I don't know what I could have possibly done to upset them. I am asked, "Why do you plug your ears?" I am told repeatedly that nobody wants me here. I am the only one who isn't part of a group. Sometimes, I get bullied. A parent ...

To the dad who removed his crying toddler from the waiting room

Young female child crying First of all, thank you VERY MUCH for your thoughtfulness in choosing to remove your crying toddler from the OB/GYN waiting room. I am sure it was boring for your daughter to wait on top of being sick. I could hear the mucus rattle when she coughed. Being patient for a toddler is hard on a good day, but far harder when you are sick. My autistic brain can remember back to when I was a toddler. I was about to go in for my yearly exam. I had a meltdown earlier in the week and was dreading the pain and pressure that always comes from having a metal speculum inserted into my vagina. I have a very good doctor who is both practical and patient, but it is still a very uncomfortable experience. Not having to figure out how to run out of the office, possibly punch myself in the head or knock something over was a HUGE relief. I was able to remain seated and chew my stim pendant, filling out my paperwork (I wish they could just e-mail it-very stressful as I am ...

The Onion in the Petunia Patch Part Three

Young adulthood-present I attempted suicide when I was 17, six months before graduation. I was hospitalized for the first of what would be over 20 spanning from 1997-2006. More bullying and much more blame came from what was supposed to be a place of healing. I was told how spoiled I was, what a con-artist I was; manipulative (as if plugging my ears and screaming at the loud toddler visiting was my way of wanting to “get” something from someone-other than quiet). There were more suicide attempts. In 1998, I saw the next in a series of psychiatrists/psychologists. This man diagnosed me, wearily, with “autistic tendencies”. I was 19. I went on to getting into trouble with the law and almost being imprisoned. I firmly believe if it hadn't been for my mom’s nursing sense and persevering spirit, I would have gone to jail and would not be here today. I questioned God. I began to wonder if He really did exist. I decided that He did, but that He hated me, even was bullying me. How s...